A CARNOUSTIE man is taking on the challenge of his life to raise money for research into his daughter’s rare skin condition.
David Taylor is dad to a five-year-old girl who has Congenital Melanocytic Naevi syndrome which causes birthmarks that can cover up to 80 per cent of the body. The syndrome can also affect the brain or spinal cord and his daughter has to undergo MRI scans to check for any neurological problems.
The syndrome is thought to affect just one in 10,000 babies born in the UK and many families can struggle for months or even years to get a diagnosis.
David (35) is climbing Mount Kilimanjaro for Caring Matters Now, the only UK support group for people affected by the condition. He says it’s important to find out what causes CMN syndrome in order to develop the best treatments.
He continued: “When she was born, nobody could tell us what this huge dark mark on her skin was. We didn’t know what the best course of action was; if we should try to have it removed or not.
“We weren’t just worried about how it could affect her health; we were also concerned how it would affect her socially. People can be very hurtful, even when they don’t mean to be, which is why we want to raise awareness about CMN syndrome as well as money for research.”
David is one of 20 fund-raisers attempting the 5,895 metre climb in Tanzania between October 2 and 13 and wants to raise at least £4,000 towards the charity’s £40,000 target.
“This is going to be the toughest thing I’ve ever done” he said “but I will be inspired every step of the way by my little girl.”
To make a donation to David Taylor visit www.justgiving.com/davietaylor